Interview with Attorney

The link below is an interview with an attorney who has Usher's. It helps me to read it when I am experiencing my own personal pity party.

http://query.nytimes.com/gst/fullpage.html?res=9E01E7DB153FF931A15751C0A96E958260&sec=&spon=&pagewanted=all

Another inspirational attorney...It is not an oxymoron! :)

http://www.abanet.org/disability/spotlight/jan08.shtml

Could not Resist

Okay, turn your speakers up and enjoy! Try not to get so disoriented that you vomit. :)

http://www.youtube.com/watch?v=Z4osbcmbSkc

FFB Advises Antioxidant Combination

Okay, vitamins are nothing new. But, empirical data showing that, only in combination, they slow retinal disease and an accompanying formula which is currently available? That is news. I heard the Foundation Fighting Blindness recommended the use of "New Focus" at their L.A. conference. They cite studies in England which support its use. I did some surfing and found one in PubMed from Sweden.

Many have maintained the reason supplementation has been difficult to study under the current scientific framework is because supplements generally work in a synergistic manner, not an isolated one. A "one variable at a time" scientific structure makes it hard to prove nutritional supplementation. It is good to see researchers testing them in combination as well as isolation.

I know nothing about the company below. I have no commercial interest in them. But, this is the formula recommended by the FFB. Before you roll your eyes thinking, "another airy fairy thing that is supposed to work and does not", read the data. Also note this formula was made to replicate the proportions of the elements included in the study.

http://www.goodhealthusa.com/pd_pure.cfm

Data from the Swedish study. The FFB mentioned English studies as well, if you are motivated to do more research and find them.

http://www.ncbi.nlm.nih.gov/pubmed/17293057?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

Gene Therapy

Some scoop on the LCA trials. One of the commenters on the blog below had a gene therapy procedure for LCA currently in clinical trials. LCA is a genetic retinal degenerative disease. Once there is one successful gene therapy trial, then it will be extended to different types of rd disease for which there are identified genes. Verdict is still out. If you want to get a genetic test and be added to a registry, contact the Carver Lab at the University of Iowa.

http://lcablog.blogspot.com/2007/11/one-more-lca-trial-for-rpe65.html