Disclaimer

When I initially started this blog, it was to record the changes I experienced in order to both remember them as well as share with friends of mine who have RP. I did not intend, at that time, for a wider audience. That is why I did not link to other blogs, etc.

The way things have evolved, it is now read by a wider group of people with differing interests. So, I feel the need to reiterate that nothing I have reported has been independently verified. These are just one person's perceptions at this point in time. It could be a real improvement or a psychological byproduct of simply wanting something so desperately to be true. Time will tell.

I plan on scheduling an ERG (electroretinogram) this summer. My last one is three years old, but showed pretty much nothing. So, short of a negative score, I do not know if using a newer one as a baseline would make much of a difference. Of course, I am not a doctor or a scientist.

Spotted Doors

Every morning I unload the dishwasher and put away the dishes. Usually, I make sure to close the doors on the cabinets each time I put away a dish. This way I do not hit my head on the corner. Today I noticed I can put away the dishes while leaving the cabinet doors open. I am able to spot the open doors and do not hit my head.

Now if I can actually have shins with no brusies on them that will be an accomplishment. Hey, I have nothing against looking like I play field hockey except for the simple fact that I don't. :)

Last night my husband and I went out to dinner. While seated at the table, everything began to flicker. It was like looking at a television set of really low quality. I asked him if he noticed it , he didn't. Later, it stopped. Since, it starts and stops at various times, but is not distracting like it was last night.

I also was able to spot curbs and stairs without looking for them.

Today I have the sensation of broader fields of vision. While my son eats breakfast in his high chair, I usually sit across from him and have my morning tea. I could look at him this morning and see the tea as I raised it to my face. Not only did I see the cup, but I could see the light reflecting off the tea inside it.

I remember experiencing visual field changes after receiving acupuncture, three times a day for two weeks. This is a similar experience.

In the past, the improvements have always been fleeting. So, it is with cautious optimism that I welcome these changes now.

Today the contrast does not seem so overwhelming. The colors still seem very bright, but it is not agitating.

My husband as well as a good friend mentioned that I seem more confident as I navigate my way around.

It is hard to believe.

Today I noticed the blue paint on my bathroom walls is a sea blue, not a gray blue. The sun streaming through the leaves of the trees is so starkly contrasted with the green of the leaves. I feel very touched by the grace of God. I never did anything to deserve this, that is for certain.

Sometimes the high contrast of things is almost agitating since my brain is not accustomed to it. It is going to take some time for my mind to catch up with my eyes and get used to actually seeing things as they are again.

Our world is so incredibly colorful and beautiful. This experience is like being in the grime of the inner city, with all its smog and pollution for years. Then, one day, you take a drive in the countryside and see just how blue and cloudless the sky can be.....It is a beautiful and blessed sight as well as a surprise to the senses.

Article about the Implant

The link below is to an article about the procedure I had done and Dr. Sapse.

http://www.transworldnews.com/newsstory.aspx?storyid=8154&ret=news.aspx&cat=business

The following link is to Dr. Gonzalez's website. He is the doctor who performed the implant procedure.

http://www.aculongevity.com/