Lucy

A dear friend of mine also has RP. We have known each other for years and met at a different foreign RP clinic. She lives in another state and we talk regularly on the phone. For purposes of this post we will call her “Lucy”.

Lucy had the implant a month after I did. She has had a two line improvement on the Snellen too. Her color vision has improved. She has noticed no difference in her fields or night vision. She is anticipating the “yo yo” and says if she did not test her own vision she may have missed the upturn.

She has not been to the ophthalmologist. Lucy has a Snellen chart at home as well. Like me, she has traveled and tried most modalities, except the Cuban surgery, out there. Our vision loss is also strikingly similar. Our friendship has spared my husband many a countless hour of having to hear about this stuff.

Lucy says she will talk publicly about this experience if she has documented, undeniable results that are stable. Meanwhile we are working on getting her to the ophthalmologist.

If you do not have RP, it can be hard to understand the dread of going to the ophthalmologlst. It just brings back bad memories, is painful, always unpleasant news….plus they never give you a lollipop at our age.